A resource for families, written by one
Spastic Diplegia — From a Parent Who's Living It Too
A resource for families of children with spastic diplegia, and for adults who grew up with it — built by a parent, not a law firm or a hospital marketing team.
I started this site because when J was diagnosed with spastic diplegia just before turning two, most of what I found online fell into two buckets: dense clinical language written for other doctors, or “resource” pages from personal injury law firms that read suspiciously like sales pitches. What I actually wanted was simple — someone a few steps ahead of me on this road, telling me what to expect and what actually helped.
That’s what this site tries to be. Not a substitute for your medical team, and not a place to feel sold to — just honest, practical, kept-current information from a parent who’s been in the exact chair you’re sitting in.
Just diagnosed
My child was just diagnosed
Start here if you’re early in this — newly diagnosed, still learning the vocabulary, not sure what to do first.
Older kids & teens
I’m parenting an older kid or teen
IEPs, growing bodies, changing equipment, and the questions that come with each new stage.
Adults with SD
I’m an adult with spastic diplegia
If you’re looking for content that isn’t only about kids — this section is for you.
You’re not doing this alone.
Every family’s version of spastic diplegia looks a little different. If you want to read stories from other parents and adults living with it, or share your own, this is the place.